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Thomas A. Edison

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Content: (You need an open internet connection to read the entire newsletter)

• Quotes for Your Life
• I get letters: Hyperacusis? Crazy? The Trouble with "Specialists"
• "Wreck" - a letter from a happy father
• Dr. Z's comments

• How to Begin
• Your first step towards a healthier life

Quotes for Your Life

"Here is the test to find whether your mission on earth is finished: If you're alive, it isn't."
Richard Bach

"How far you go in life depends on you being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and the strong. Because someday in life you will have been all of these."
George Washington Carver

" However mean your life is, meet it and live it; do not shun it and call it hard names. It is not so bad as you are. It looks poorest when you are the richest."
Henry David Thoreau

I get letters

Hyperacusis? Crazy? The Trouble with "Specialists"

"I was a passenger on my husband's motorcycle. We were going down the freeway at 65 miles per hour. We hit some construction equipment and I flew off the back of the bike and landed on my left side and crushed my left arm. I hit my head. Luckily I was wearing a helmet. I don't remember anything until I woke up in the hospital.

This happened in September 2005 in Concord, CA. The first thing that happened when I woke up I had to have surgery on my left arm. I remember waking up and the nurses standing on top of me and I started dry heaving. They ran me down for a cat scan. They came back and said there is nothing - they cannot see anything. And then the seizures started happening more and more with uncontrollable crying and dry heaving. I don't think anybody knew what they were. Any sound, any movement started the seizures. There was a sign on the wall in my hospital room saying:

• No cell phones, no talking, no TV, no radio, nothing.

They wouldn't let anybody talk in my room. Because it was a trauma center there was nothing they could do for me. They put me on Adavent for my pain. I was in the hospital for 10 days and I couldn't leave my nephew's house for another seven days.

Then they flew me home. I went to my regular doctor, who put me on Neurontin. I went crazy on this medication. Suicidal.

Then they tried to put me in the mental ward up in Seattle, Fairfax mental hospital. I kept telling them: "I hit my head, I'm not crazy. It's the medicine that makes me feel like this." But the doctor insisted that "the medicine won't make you do that". But finally he took me off it.

The left side of my head was very swollen. It was bad. I remember sitting in the hospital bed and looking in the mirror. I started crying. It was awful. My whole face was off. I called my mother, but I couldn't say anything. I still don't know how I remembered her phone number. She somehow knew it was me calling.

Then they put me on Paxil and I felt terrible. With Paxil I got this really weird sensation all over my body. I didn't cry, but I couldn't even communicate. At that point I had only been to one neurologist who was very mean. She said to me: "I give you two choices. Do you want Paxil or Zoloft?" I said to her: "You are the doctor."

My GP put me on Neurontin. He told me it is good for pain and the seizure type activity. And then he put me on Clonazepam/Klonopin. I have been on Clonazepam for two and a half years.

I have gone to see eight neurologists, a chiropractor, an inner ear specialist, an osteopath, a psychiatrist. The chiropractor asked me if my neck hurt, and I said no. So he decided that my neck was not the problem. He would then try to adjust my neck and I immediately went into a seizure. So he backed off and referred me to another neurologist.

At that point I went to see an osteopath for cranial sacral therapy. He talked to me about the accident and then put me on the table to perform the exam on me. He shined light in my eyes and I immediately went into a seizure. He referred me to another neurologist.

This neurologist said I probably had an inner ear disorder. He started to perform an inner ear test and I immediately went into a seizure. He ran out of the room to get my husband, brought him back and told him: "I think you've got to take care of her." He literally ran out the door and I never heard from him again. He never called me. I called him several times and he never called me back.

Then I went to an inner ear doctor. He actually was the one who told me that I did not have an inner ear disorder. He told me you have a neurological disorder. I went to see another neurologist who told me: "No, you don't have a neurological disorder. You have a psychological problem. So you need to see a psychiatrist."

So I went to see a psychiatrist. He decided that I had a Post Traumatic Stress Disorder. But the neurologist insisted that I did not have a Post Traumatic Stress Disorder.

I had a lot of very expensive and very painful tests. All of them came back with no clear answers.

I ended up at the University of Washington for more testing. They had me sit in a chair and had me look at words and read the words on a poster while they were spinning the chair from one side to the other. Immediately I went into a full fledged seizure. The examining doctor then told me: "I think you have hyperacusis." Hyperacusis was the only thing they could come up with. One of the many labels I was given.

I was a prisoner in my own home. I could not leave, drive a car, go to work, nothing. It was terrible and depressing.

I kept researching on the Internet about inner ear disorders. I found Dr. Z through a laser website in Sweden. So I made an appointment with Dr. Z to have at least ten laser treatments for my hyperacusis. My parents came along to drive me and support me. I had a seizure on the flight to Sacramento.

During the first appointment I went into a full seizure that lasted about 40 minutes. It seemed I was reacting to Dr. Z's voice. So he started to whisper to me, which I could tolerate. He was willing to keep working with me instead of referring me to another specialist.

It was actually very disappointing when Dr. Z told me during my first appointment that I might not have an inner ear problem, and that he would not start with low level laser therapy. I was taken aback, because I had come here for Laser Therapy.

Dr. Z pointed out that I was not just hypersensitive to sound, but to pretty much everything else, such as touch, vibration, light. Even movements of my arms and my neck would set off seizures. He told me that a part of my brain, the temporal lobe, was not functioning properly.

I had many other symptoms: Nausea, vertigo, motion sickness, constipation, bloating feeling, belching, gas, ringing in the ears, mood swings, anxiety, anger, depression, fatigue, blurred vision, headaches, insomnia, rapid pounding heart beat, stiffness, muscle pain, weakness, poor memory, confusion and more.

I decided to get off Clonazepam after Dr. Z went over the possible side effects with me. Many of these possible side effects described me perfectly. Plus, this medication was not really able to prevent my seizures.

Dr. Z recommended that I try his Personal Portable Oxygen Bar and use it several times a day. I noticed an immediate improvement. My seizures would not last as long or get that intense. He also put me on a no carb, high protein, high fat diet with several nutritional supplements to help with blood sugar, digestion and for brain support.

After just one week I had the best day in 2.5 years. I felt like my old self.

• Dr. Z was finally able to adjust my neck.
• He taught me how to stop seizures when they come on.
• I am much less sensitive now.
• I can move my neck, move my arms.
• I can tolerate Dr. Z's normal tone of voice.
• I have not gotten car sick any more, even on very windy mountain roads.

We stayed a total of 2.5 weeks. I saw Dr. Z five days a week. I had only one other seizure during the second part of our stay. That was after driving on a very rough Interstate 80 to Truckee. The road was so rough that my whole body was shaking. On the way back I decided to lie down so my head would not bounce up and down. It worked beautifully. No seizure. I have learned a lot.

My parents are thrilled. I am so very grateful. Maybe I can get my full life back, go out to dinner, have friends over. Maybe I can even go back to work."

Anita N, Seattle

Please read the entire article...............

Sincerely

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